Category: Fertility Testing

0.6%-0.8%…That’s me…


Seems unbelievable right? To be included in SUCH a small percentage of what “could” (or could not) happen?

“Approximately 0.6%–0.8% of patients cannot reach the minimum endometrial thickness for pregnancy”


I went in today for a “natural” cycle lining check….let’s be REAL nothing is “natural” anymore. I’m literally a human test dummy…and the verdict….2.8mm…..:( As most of you know…it should be more like 8.0mm+ I am dumbfounded and so are my RE’s…..

I had my 2nd hysteroscopy on April 10. I went to THE premiere Asherman’s Syndrome Dr….he did the hysteroscopy and said…he only saw some “filmy adhesions”…not that bad and a “small” bald spot in the upper area of my uterus. He didn’t seem too concerned. He put me on Pentoxifylline(Trental) and Vitamin E(I actually started it at the end of March when I first saw him)…and we wait a couple of months….

I know it’s only been a little over a month….but most people have their thickest linings right AFTER a hysteroscopy….and mine is basically non existent…

Now…I also….re-read my last paragraph…and I did write “most people”….obviously, i am NOT most people….I am, unfortunately, part of the 0.6%-0.8% of women who cannot seem to reach the minimum endometrial thickness for implantation…….those odds…..not even 1%

This all just happened about an hour ago. I was optimistic….feeling great…feeling like…”my lining should be nice and plump” The surgery had to work!

Then the ultrasound…and nada….I still have a super thin lining AND fluid in my lining πŸ™ What’s the deal?

0.6%-0.8%….it just gets me…..gets to my soul…..why me? How is it possible to be a part of this percentage?

What gets me most is how easy the Dr.’s are to start talking about gestational carriers. Like it’s like…ordering a pizza…what?? Sure, because everyone just has $100,000 laying around….

But, I am EXTREMELY fortunate and after my 2nd IVF, I have 6 blastocysts…very fortunate and blessed…but I’ve never even had an embryo near my uterus….ever. I’ve never been pregnant….never had a miscarriage…never a D&C until last Aug. I only have one tube…that’s blocked and now…that’s REALLY blocked because I had the Essure device placed to prevent a possible Ectopic pregnancy or fluid pouring back in killing an embryo.

I’m still determined to, at least, have one embryo placed in my uterus before looking into a gestational carrier(if that’s even financially possible??)…can’t even think about that now…even though tears still seem to force their way out of my eyes…like I have no control over them…I am strong…but gosh…I am less than 1% πŸ™

I’m researching like it’s my job…and it WILL be my job…because I have no choice…

I’m looking at all of the options…there HAS to be an option for us 0.6%-0.8%….and I’ll find it..

I’m going to try another lining stimulation cycle next month…with estrogen injectables…with 2 IVF’s down…injectables are nothing to me…so let’s do it…we might also try something called G-CSFΒ It’s new and the results are mixed but I’m literally willing to try anything….

I’ve also looked into stem cells….

In 2009…a women in India had impossible problems with her lining and using her own bone marrow stem cells…they implanted them into her uterus and she was able to grow an adequate endometrium….I really hope I don’t have to go that route (God are you listening πŸ˜‰ but don’t put it past me…

I’m on a mission….I have tears streaming down my face…but they are fighting tears….I wipe them away as I search and search for what is right for me….and what is right for me is not giving up and finding everything and anything i can about growing my lining…

0.6%-0.8%…..I have 99.4% against me…..but there’s still a chance….and as long as there’s a chance…I haven’t lost…..

And I don’t like losing…..


Why I’m here

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After writing on this blog for almost 1 year, I don’t think I really ever explained why I’m here.

Sure, I have infertility. But I’m probably one of the few people who actually knows why she is infertile. I don’t know how to fix it…but I know how I got here…

Here’s my story:

When I was 9 yrs old, I got very sick. I was taken to the Dr.’s office numerous times and they said I just have a bad case of the flu. I’m a pretty tough cookie and my Mom knew it so when I continued to complain and my health steadily declined, she could see that I was dying in front of her eyes. She took me back over 5 times and on the 5th time when they told her to go away and take me back home….she said, “No, you are admitting my daughter to the hospital…something is wrong and I’m not going to let her die in front of me!”
I was only 9, but I remember her actually saying that….I didn’t understand it really but I knew I was very weak and everything hurt.

She was right.

My appendix had actually ruptured days ago. I was dying…right in front of her eyes.

The Dr.’s couldn’t believe how well I had handled all of this pain. They rushed me into surgery and tried to save me.

I made it out of surgery…but we were still not out of the danger zone. This was just the first step. Because my appendix burst, toxic fluid was all over inside of my body. They tried to get it all out but it is very hard to do once it ruptures and especially because I was so young and small.

I was in the hospital for over 2 months. My blood being drawn every couple of hours because my white blood cell count was always off. I remember crying about the needle and tape they would use on my tiny arm…I still have the scar on my left wrist from the numerous ivs in it…I’m looking at it as I type…

I turned 10 in the hospital and what I remember is a bunch of “Get Well” cards from my friends in school and a priest. I didn’t know it…but the hospital didn’t have high hopes for my recovery. They gave my Mom a 40% chance. I remember the priest praying over my bed. I didn’t know why he was there but I do remember him being a nice, calm man with grey hair and a “book” πŸ™‚

I knew I wasn’t going to die. I guess everyone else didn’t realize I already had that figured out πŸ™‚ I don’t think that goes through a child’s mind. Death. At least it didn’t for me…

It was a long road but after 2 months laying in the hospital and another year after that in and out of Dr’s offices…I was able to finally go back to school…and try to live a “normal” life.

I’ve been lucky. I guess I can say that? Since I’m still here..and alive?

I’ve had to have other surgeries. I had one at the age of 19 to remove an 11cm cyst on my right ovary. They ended up having to remove my right ovary and right fallopian tube.

I guess after that, I should have looked more closely at my future fertility. But when you’re 19, you don’t think about things like that…I was just happy to have another surgery down and to be healing.

Then time passed. And years went by. 21, 25, 28, 30. I wasn’t even trying to start a family yet because I hadn’t met my husband. I did always go to my OBGYN diligently every year. I thought that she would tell me if she ever saw something that I needed to get checked out..but that never happened.

It wasn’t until we got married and immediately started trying to have a family where things started to unfold. I didn’t want to believe that after all I had been through….that this might just be the beginning. If I wanted to start a family, it was going to be a process…to say the least…

And now, I am here.

I only have one ovary and one fallopian tube. Through HSG we found that my one tube is blocked and to top that off I have hydrosalpinx, I had a hysteroscopy to clean out my scar tissue and insert an Essure coil to block the hydrosalpinx, I’ve been thorough 2 IVF’s, one cancelled FET and an endometrial lining that doesn’t seem to want to get past 4mm πŸ™

But I am still here.

I’m here because I want to help anyone in my situation. I want to tell everyone who’s had a ruptured appendix that your fertility is in danger. They didn’t tell me that…not even a mention.

I’m taking control of this. One day, I will get pregnant and stay pregnant and deliver a healthy baby(babies). And I want to let anyone going through fertility issues to be able to learn from my situation. I have it all folks: damaged tubes, unresponsive uterine lining, cysts, DOR, only one lazy ovary and scar tissue all around.

But I’m still here….fighting.

I’ve decided this is my year of “No”

No, Dr’s, you won’t tell me I’m an impossible case that can’t be fixed. No, I won’t “Give up” because I don’t have another option. No, I won’t just do what every Dr. tells me because they went to med school and follow what precedent has been set.

I’m unique. Therefore I need a unique plan of action.

I know it won’t be easy but I know I’m not a “lost cause”.

And that’s why l am here.

Thank you all for reading my story of why I’m here.

We all have our own story…and I’m glad to be here to support you all too.

Thank you for supporting me on this journey…

We are gonna get through this…