O.k….so after having a short 23 day cycle last month….I began FET#4…

So far I’ve been through 3 other FET’s to try to build my lining to an appropriate thickness to carry a pregnancy….it’s only ever gotten to 4mm……every….single….time….

I’ve used Oral Estradiol Estrace (of doses up to 8mg-10mg a day), Vaginal Estrogen suppositories(3mg a day), Viagra, Trental 400mg, Vitamin E 1000mg, Wobenzyme, acupuncture(for the past 2 yrs), I even went to a Chinese Healer…yes…he was on “Ripley’s Believe It or Not” show as able to heal the “unhealable”…I know…I sound desperate…..

and I am….

I’ve had these 6 blastocysts waiting to be transferred since Jan(and one little morula from my first IVF in Nov)….just sitting there…frozen….waiting for a home…..and I’m really trying to give them one…..

So we are here….

2 weeks ago, I started Estradiol Valerate(Delestrogen) shots. They use the same needle size as Progesterone shots. They look like GIANTS compared to the tiny IVF med shots…here’s a pic:

CIMG2235

 

But once again….no reason to freak myself out….we TRULY are stronger than we think….and they are not that bad…you just have to make sure you ice that area…and it’s really numb…, pinch your skin pretty tight…and don’t put the needle in too fast…steady and when I’m pinching my skin I poke my finger nail into my skin too…so I can’t really feel the needle or meds….just a little advice 🙂

Lining checks: Not good 🙁 There is still fluid in my lining and it’s only about 3.6mm…..boo…hoo…also, my E2 is at: 4108…too high….so I’ll lower my dosage of Estradiol Valerate and only 2 Estrogen suppositories instead of 3 per day.

So, to me, obviously estrogen does not work on me….too much, too little…I get the same poor results….thin lining.

I’ve realized I have to be my own scientist. I read all of the literature. All of the studies. ALL OF THEM.

Now that I know estrogen is not going to cut it for me…next month we are trying a drug called Tamoxifen to grow my lining.

It works a little differently than estrogen…it binds differently to certain estrogen receptors….and has shown promise for women with chronically thin lining.

Who knows if it will work….but I’ve gotta try right? I’m not giving up on myself yet.

Obviously, my RE continues to suggest a Gestational Carrier for me. He feels that, that is the only way I’m going to be able to have my own child. He believes that my endometrium has been severly damaged due to my appendix rupturing, causing chronic infection and inflammtion throughout my body. He says that looking into a gestational carrier now would be no harm starting the process because it takes a while and he knows that I still want to try to grow my lining…

What he doesn’t know is that I WILL carry my own baby. Period.

I will not give up on myself. I will not stop researching studies and various techniques throughout the world for women with my problem. There HAS to be a solution. Some link. Some medicine. Some sort of indirect association that just needs to be found to put it all together.

I’m not only doing this for myself….I refuse to give up on the hundreds of other women with this problem, Chronically Thin Endometrium. If they don’t have the strength or opportunity to search and test other options before having to turn to a gestational carrier…I will do the work for them. I will fight for them and I will post everything here.

I didn’t go to med school. I’m not a Dr. or an RE….and I never will be. But I am a patient…and I have a problem….and that problem needs a solution. I understand that certain treatments that “should” work are not working….so maybe we should think out of the box? Obviously my case is unique….therefore I need a UNIQUE plan….seems simple right?!

I am very thankful that my RE has agreed to try “experimental” protocols with me(let’s just say I wouldn’t take no for an answer…ha!). Don’t get me wrong, I don’t want to put my life in danger but I also don’t want to give up on something that I feel can be solved, can be figured out…with a little effort….

So, there ya have it. I will continue these Estradiol Valerate shots for the next week (maybe my lining will miraculously perk up??) and then on to Tamoxifen. It is one of those experimental things….it’s currently used for breast cancer patients but this study showed promising results….for us thin lining ladies….

Don’t give up on hope. Whether it be for thin lining, PCOS, poor egg quality, immune issues, overweight, underweight, no ovulation, RPL, etc…..you are not alone. Remember…there’s always someone in your corner….cheering you on..and fighting for you….

Determination…..that’s what it’s about and I’m ready to battle….

Theres-no-force-equal-to-that-of-a-determined-woman

 

 

19 Comments on FET #4: Screw Estrogen

  1. You are such a strong woman and I admire your determination. That needle you showed…made me sick to my stomach. YIKES!! Hugs to ya girl!

    waitingforbabybird.com

    • Ha! That’s what I said…and my husband was like” Ummm…that’s going to go through you!” Yes, it has to go all the way in…to the muscle…I do it in the upper outer butt area…I just pinch it up and out so there’s a little more to go through…YUCK…is right! But I’m alive and when it’s numb…it’s really not too bad 😉 xo

  2. I am so glad you are determined! That needle looks scary to me! <3 I took Tamoxifen for 3 years after I had cancer. I am currently on a break from it. My side effects were awful! I hope you don't get any side effects! Best wishes to you.

  3. You are one very strong woman and I too admire your determination! I’m glad your doctor is willing to work with you to come up with new treatment ideas. At the beginning I was not super fond of my RE, but one thing she does really well is listen and reflect on the different studies I have come across. I’m not sure all my researching is going to lead to a baby in my arms, but I do know that I need to do it in order to feel I am doing everything I can.

    • Yes…we have to feel like we’ve done it ALL! We are all sooo strong for all that we have to go through….what’s a little more strength and determination…I’m throwing it all in! I’m thinking about getting the biopsies and such done like you did…so much we have to go through to figure it all out! Best wishes to you too! xo

  4. I love your resolve to carry your baby! Your situation reminds me of my dear friend Suzanne at Our Journey to Baby Bump. She also has Ashermans and has 5 embryos frozen from her egg donor cycle. She just recently consulted with a specialist on Ashermans and found a protocol to get her lining up… Maybe y’all can share information!?! Just a thought. Thinking of you and wishing you luck with your lining.

    • Thanks a bunch Jessah! I’ve read Suzanne’s blog(so great, both of your blogs) and one of my Dr.’s is the Asherman’s Specialist she talked about, Dr. March. He’s done one of my surgeries and I’m hoping things with my lining turn around soon. I’ll def send her a message though since we have been through similar situations…thanks and btw…GOOD LUCK today!!!!! :))))))))) xoxo

  5. I love your outlook and tenacity. It’s lovely. I have Asherman’s Syndrome and have tried multiple cycles at trying to get my lining to respond. Would love to share with you what I know. My situation is very precarious because we also have severe DOR and had to use donor eggs, so the embryos I have (5) are it for me. Therefore we are using a GC, but our hope is that after that works (because it WILL work, I’m believing!) that we can return to my uterus for any remaining embryos we have. (I’m also the same person Jessah is talking about above, and I think we follow each other on instagram…or at least I you!)

    • Ahh Suzanne! Jessah just mentioned ya above 🙂 And yes, I’ve been following your blog…and your tenacity is inspiring! I know that you will have your baby in your arms very soon….one way or another! And ,yes please, ANY info that helped your lining grow would be truly appreciated!! I love that you were able to get it to around 7 or 8mm! Mine just seems to be stuck in the 3-4mm range 🙁 I feel like there has to be something that works?! Would love to know your protocol that ended up growing your lining….thanks again and I’m cheering for you on every step of the way towards your future baby! xo

  6. I came across your blog looking for solutions for thin lining. Did anything you’ve tried eventually worked? I am starting my first FET but the lining is something I’ve struggled with since my first IUI (I did 4) and the fresh IVF didn’t work, probably because of it. I really need some hope…

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